Actually a book was written where parts of Bianca's story and some of her photos were included (click here and turn to page 14...). Bianca is very proud of this book and loves sharing it when she gets a chance. This book is more a factual "what is leukemia" book though and not actually Bianca's journey and her full story. It was fun working with Sandra Markle (the author) at the time on this project of hers.
The closest I've ever come to writing a book was when I made up a little picture book which Bianca got to share in her class at school. All about what happens when she goes to hospital and in really basic terms what leukemia is. Bianca wanted to take her beads to school to show to her friends and I thought it would be good for Bianca to read them a little story about what happened each month she had to go to hospital. The kids often asked why I was there to pick Bianca up early and of course they all knew she was a bit different and was unwell. This was when Bianca was 5 and at the start of her Year 1 year at school. Here are some photos of that day:
|I was holding up a second copy to show the pictures while Bianca was reading from her copy. Bianca was 5 and it was at the start of her Year 1 year.|
|Showing a page with photos while Bianca was reading the same page from her book.|
|The kids loved looking at the beads|
Writing an actual book, published and for sale? I don't know. For one I don't think I write well enough to even begin to consider this and besides who would be interested in reading such a book? Thinking back or reading through old blog entries of going through old photos - it can be quite exhausting and overwhelming. So I don't know if this is something that will happen.
I saw this photo on one of the groups I belong to on Facebook:
I've realised that for me there is something worse than child cancer. Worse and more difficult than what we ever went through. That is knowing so many parents who lost (or are busy losing) their children to this horrible disease. Before Bianca got sick I didn't know a single parent who lost their child. Now I know so many and it just breaks my heart!
In 2 days' time a friend on Facebook will have reached 1 year since she lost her little boy Kael. It is incredibly heartbreaking to read her updates at the moment, to see the photos that she is sharing (which I won't share here because I don't know if she'd want me to). I cannot even begin to imagine and I so wish child cancer didn't exist. No parent should ever have to endure watching their child take their last breath.
Leah, Micheal and Ella - you are in my thoughts during this time as you remember your last days with your brave little boy. My heart breaks for you!